Care in an intensive care unit is not a trivial experience, neither for the patient nor for his family. And, beyond the technicality or even the urgency of the care, the well-being of the patient and his relatives is a decisive factor in the quality of care. This study from the Beth Israel Deaconess Medical Center (Harvard, Boston), which looked at the attitudes of patients and their families faced with such an experience in an intensive care unit (ICU), shows the importance of the latitude left by the care team to speak freely about their care concerns. This aspect of the caregiver-patient relationship appears to be just as essential as coordination within the team for health outcomes.
Previous studies have shown that when all members of the clinical care team communicate and “feel comfortable,” team performance improves. However, in-depth knowledge of patients' wishes, their medical history and the reactions of their families contributes to a more efficient care offer because it is centered on the patient. Patients and families must therefore also “feel comfortable” sharing their concerns about care with the medical team. This study took a closer look at this opportunity for patients and their loved ones to express themselves in real time in the context of the ICU.
Clinician researchers from the Beth Israel Deaconess Medical Center (BIDMC) asked patients and relatives who had recently experienced an ICU hospitalization about their ability to express their wishes and wishes to caregivers. Specifically the team interviewed 105 families of patients admitted to ICUs from a university hospital from July 2014 to February 2015 as well as via the Internet, a panel of 1,050 participants who had recently experienced ICUs. The analysis shows that:
- 50 to 70% of the family members of a patient in the ICU hesitated to express their concerns about the situations or decisions of care in particular on the safety aspect;
- The fear of being called a “troublemaker”, of not knowing whom to turn to, and relentless treatment are the reasons most frequently given to explain this hesitation;
- On the other hand, on other less “compromising” subjects, including drug prescriptions, nearly two-thirds of patients and their families say they feel very comfortable expressing themselves;
- but only a third of respondents dare to express a concern about hand hygiene or a disagreement, with the healthcare team, about an attitude of their hospitalized loved one (aggressiveness of the patient, for example).
Oral expression is a key element of the culture of safety : yet the study reveals a difficulty for the majority of patients and their families to speak during an ICU stay. Yet, in such a critical care setting, families may hold valuable information for clinicians. They are also often the first to detect a change in the patient's clinical condition. Families should therefore be encouraged to voice their concerns.
These results underline the need to explicitly help patients and families to express themselves in real time, including on "perceived errors", which could improve the safety of care, note the authors. Giving patients and their families a voice is a relatively inexpensive intervention that could significantly improve patient and family outcomes.
" Ensuring that clinicians listen to patients and families when they speak can also help ," the researchers suggest.